The Center for Outcome Analysis, Inc., (COA) is a non-profit firm founded in 1985 to perform evaluation, research, and demonstration projects in the human services and health care services. COA is founded on the principle that service agencies should be guided by the measurable individual quality of life outcomes of their services and supports. Many qualities of life are reliably measurable, and they should be measured. The ultimate unit of accountability for human services must become the quality of life of the people receiving supports.
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COA is undertaking a long term outcome research effort on workshop closure. Some states have ended sheltered workshops and sub-minimum 14(c) wage programs. But the evidence about the outcomes for individuals is inadequate. Read the COA White Paper and plan for multi-year national research here.
We have just completed a Pilot Test Opinion Survey about the individual quality of life outcomes of workshop closure. It is NOT a nationally representative survey, only a test of the method - nonetheless the trend of the results is clear and thought provoking. The Pilot underlines the need for a genuine national commitment to getting good outcome studies going. The Pilot report is 2016 Pilot Survey - Opinions about workshop closures.
The Evidence for Self-determination and Personal Budgeting (also called Individual Budgeting and Person-Centered Budgeting) - twenty years of scientific evidence - here.
Read a classic 1984 expose of conditions at an institution - Pennhurst - and the victory of Nicholas Romeo, whose case of systematic abuse went all the way to the Supreme Court.
Dr. Conroy's keynote speech to the Developmental Disabilities Nurses Association, on Health and Health Care During America's Deinstitutionalization and Disability Rights Movements can be seen here.
Interested in short, one page, demonstrated reliable and valid instruments to measure choice, integration, productive activity, work & income, person-centered practices, and qualities of life? See them here.
See the recent presentation on international disability policy and congregate care in Ukraine here.
Dr. Conroy is Co-President of the Pennhurst Memorial & Preservation Alliance, devoted to respectful memory of the human rights struggle of people with disabilities. Our work is centered on the historic tragedies and triumphs that unfolded at the Pennhurst institution. See our website here.
Our comprehensive study of the relationship between the size of a group living situation, quality of life, and cost can be seen here.
History of the false "community mortality scare" of the past 18 years - the original proponents of this discredited concept refused to share their data and analyses with either the state or other researchers. See some of the 1997 correspondence about this dispute here. As we now know, the "mortality scare" studies were based entirely on a simple miscount of deaths in California institutions and community homes.
The classic Pennhurst Longitudinal Study can be viewed and downloaded here.
For information about our rapid, efficient IRB review process, write to SDevlinCOA@gmail.com.